Just call me Jiji

…me, just pretending to be me ….now, where did I put that cape??

Archive for the day “March 30, 2012”

Leon’s Quest…

Welcome to Leon’s Locks for St. Jude Kids

My amazing little boy has been on a quest to,

Help the children of St. Jude.

This is his story;

It was just over two year’s ago when 7-year-old, Leon, came home from school after a presentation given at his school about the St. Jude Children’s Hospital Math-a-thon.

He begged me to give him permission to do it.   Of course said yes.

Then he said, …..”Oh and mom, can I get a haircut?”

“Why do you want a hair cut?” I asked. “Well, I want to donate it to the ones that are bald….”

I said yes, thinking it would never last; but I was super proud of him none the less.

And that is when he committed himself to grow his hair long enough to donate it to a child at St. Jude Children’s Research Hospital.

Now it is two years later; he has endured the bullies at school and in camp, who teased him, picked on him, and began calling him a girl. Which only exasperated his Aspergers Syndrome, causing him to spin or walk in circles. And that provoked even more teasing. We  put a stop to the teasing and offered to have his hair cut several times, so as to avoid being bullied. Leon’s resolve was stronger than ever. He refused to to give in.

His hair is now over 10 inches at this point and is ready to be cut.  However Leon recently learned that his hair wouldn’t necessarily be going to someone from St. Jude, (although it would still help someone in need). This was very upsetting news for Leon.
Convincing a child with Asperger’s to change his mind can be an uphill battle. Leon’s Aspergers, makes it very difficult for him to transition from one thing to another, especially when it is something as important to him as this. For more than two year’s, Leon’s focus has been on helping St. Jude kids. So with this news, Leon’s determination to help St. Jude grew even more resolute.  He of course still plans to donate his hair, but first he wants to help the children of St. Jude.

And Now, A Message from: Leon 

Welcome to my Leon’s Locks for St. Jude Kids event page.

My name is Leon Oldfield and I am in 4th grade. When I was in 1st grade, I watched a video in school about St. Jude Children’s Research Hospital. It made me want to help those kids that were just like me; except they were very, very, sick and some of them were even bald. When I got home from school, I told my mom that I wanted to join the school fundraiser to help those kids, and then I told her I wanted to donate my hair to them too. My mom told me I would have to grow it real long. And that was just fine with me.

Now my hair is really, REALLY. long, but that doesn’t bother me at all. Because of my Asperger’s Syndrome, I tend to hide behind it, so I know I am going to miss it, but it is time to cut it. My hair will be donated to make a wig for someone who really needs one, but I found out it might not go to someone at St. Jude. So now I am hosting this event to raise money that will help out St. Jude kids directly.

This event will help St. Jude Children’s Research Hospital find new treatments for childhood cancer and other catastrophic diseases. Your donation can help me to reach my goal of $5,000 and that can help St. Jude continue its lifesaving work against pediatric diseases.

Follow this link to make a donation. 

Check back often to see my progress. Thanks for helping me reach my goal for the kids of St. Jude!

Love, Leon

  PLEASE SHARE  either this page or  the donation page with EVERYONE you know. My sweet little boy with his heart of gold has set a fund-raising goal of $5,000. We are going to need all the help we can get! So please Tweet and Facebook away my friends.

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For more pictures of Leon and to see how his hair has grown over the years click here and scroll down

Something more…

It has taken me a long while to really get the whole ADHD thing down, not that you ever really do get it completely down pat. There will always be more to learn with each new year and every new experience. I’ve had to educate myself (and a few others) about this neurological disorder, and it’s been exhausting and rough at times. It’s also been very enlightening, both about Leon and about myself (going over my own life with undiagnosed ADHD). I have learned more about life and myself  in the 9 years that this little boy has been alive than I had ever learned prior to that.

In looking for answers for him I have found a few for myself. Still, I never felt that I had enough answers for him. It has always seemed to me like what we knew about him, just was not enough. There had to be something more to Leon and what’s “different”  about him than just the ADHD. And I say “different”, because there is nothing wrong with my child, just a lot of differences! But his differences have made his life more difficult.

I’m not saying he isn’t ADHD; on the contrary Leon could be the poster boy for ADHD. His severe hyperactivity and uncontrollable impulsiveness has gotten him into more than his share of trouble. We have clearly seen how severely his ADHD has impacted his life and that without his ADHD medication he just cannot control those impulses and can find himself in potentially  dangerous situations. He’s goofy and quirky, and does thinks that make him so uniquely different from everyone else.

But it is also for that very reason that I have long said there’s got to be more too it than just the ADHD. The fact that we, both my husband and I have always known that our child cannot and should not be left to his own devises for too long when not on medication has kept me searching for more answers.

When he is left to his own devises things seem to become … well lets just say challenging, to put it mildly. He becomes argumentative and seemingly willful. His actions tend to be unintentionally destructive – just last week he managed to …yank the handle off of the refrigerator door; …battle it out with his Dr. Seuss toothpaste – leaving a smeary mess; …chew up a handful of paperclips; …stuff his pockets full of rocks, sticks, snack bags, bolts, pens, pencils and any other thing small enough to fit.

...and the answer is, "things found in Leon's pockets"

Leon doesn't squeeze his toothpaste out; he rings it out!

 

 

 

 

 

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