Just call me Jiji

…me, just pretending to be me ….now, where did I put that cape??

Archive for the tag “donation”

From One Differently- Abled Child to Another

My Wild Child

Leon is 9 years old and he has Asperger Syndrome /High Functioning Autism. He is an extremely  bright boy with big ideas and an even  bigger heart.

One of  the many wonderful characteristic of Asperger’s is Determination, and he’s got  plenty of that.  When Leon has is heart set on something, he cannot be derailed. When Leon was in 1st grade, he watched a video presentation in school about St. Judes Children’s Hospital, on that day he decided he wanted to help the kids of St. Judes, because, in his words, “I can help kids who are really, really sick” .  He then told me he wanted to cut his hair

In 2008, sporting his blue mohawk

(which was  Mohawk  at the time). When I asked him why, he said “because, I want to donate it to the ones that are bald”.

  Leon has not cut his hair since and that was back in 2008. In that time he has been teased, mocked, and bullied by other kids. He is often mistaken for a girl. But Leon takes it all in stride. He simply explains to those patient enough to listen, “ I am not a girl, I am a boy. I am  just growing my hair to donate to St. Judes Kids”.

In 2011, we found out that there was no guarantee that his donated hair would go to a  St. Judes Child. In fact it was unlikely. This did not sit well with Leon at all. He was very upset in fact. Although he knew that his hair would still go to a good cause, it was the children of St. Judes and their story that had touched his heart.

This is why he began hosting the “Leon’s Locks for St. Judes Kids Fundraiser”. It was important to him that he still do something for St. Judes Kids. Leon set his goal quite high, at $5000. We know it is a long shot but we have always taught him to reach for the stars and to believe in himself.

We worked together as a family to get donations where ever we could. His father and I reached out to our contacts via email, Facebook, and this website.  We also had cards made up for Leon to give out when the opportunity presented itself.

Leon’s Story Card

He gave them out to friends and their parents, at birthday parties, and communions. We carried them with us where ever we went. We even had a pin and a T-shirt made that said “ask me about my hair”.

Then when asked he could tell his story and give out a card. This worked out very well, because Leon did not always feel comfortable approaching people he did not know. But when asked he was always more than happy to tell his story about why his hair was so long. He spoke to people on the train, in restaurants, and we even hung out in Times Square for a while, giving out information cards.

Times Square NYC

 

.Both his dad and I are very proud of how much bravery and confidence he has shown when approaching and being approached by others. We love how much partaking in this, has helped him improve on his social skills, something that is greatly hindered by his Asperger Syndrome.

Being a part of this fundraiser has helped us grow in so many ways, both individually, and together as a family.

Tomorrow, July 7 2012, we will celebrate with our friends and family at our Annual BBQ that we have every year in July. At some point in the evening Leon will cut his hair for donation to “Locks of Love”. And while we  are happy to report that since Leon began this fundraiser in March 2012 , he has raised $1385.00;  we hope to continue in spreading the word and getting more people to donate to his fundraiser for St Judes Children’s Research Hospital.

Folks can donate with a credit card via this link https://waystohelp.stjude.org/sjVPortal/public/event/page/displayEventPage.do?sectionStyle=subMenuFour&eventId=310924&programId=2002

Please forward and share this story as much as possible!!

Leon’s self portrait

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Spreading it on Thick

First I would like to THANK all those who have been so generous to contribute to Leon’s fundraiser thus far!!! We have received contributions from all different parts of the country and across the globe. (Thanks to some friends is Germany) 🙂

You are all so very AWESOME.

The Leon’s Locks for St. Jude Kids fundraising event is still ongoing. So if you have not had a chance to donate yet, please go to the website now and make a donation. Any amount that you can afford great or small, will help to make a HUGE difference, in finding new treatments for childhood cancer and other catastrophic diseases. Your donation can help St. Jude continue its lifesaving work against pediatric diseases.

Another key and very important step that you can take to help Leon to reach his goal of $5,000 is to help us spread the word. Help us spread the word by forwarding this link to everyone you know via Email, Twitter, Facebook, and even on Pintrest.

The more people we can reach; the closer we will get to Leon’s goal. So please help us spread the word.

Proud Mama

When my 7-year-old, Leon, came home from school after a presentation given at his school about the St. Jude Children’s Hospital Math-a-thon, begging me for permission to do it, I felt very proud.

He told me that he wants to set his goal at $250, That’s when I got a bit suspicious..

I thought, “shoot!, he’s just in it for the prizes!”

So I got ready to give him a little talk about helping others and how important it is.

Before I had a chance to say anything, he started to give me the run down about the video they watched in school about St. Jude’s.

Here it is as told by Leon (speed up the pace as you read for the full affect);

iCarly made a movie about the Mathathon with the Numerators, they are super heros! We need to help the kids that go there because they are really really sick. And they lose all their hair when they get the medicine. And the money can buy DVD players for them so they can get distracted from the pain. And it does not feel like a real hospital because they get toys and can watch videos all the time. So can I do it, can I?

Of course I said yes and said “so it isn’t just because you just want to win a prize?”

He answered; “weeeeeell I could say it’s because I want to earn a cool prize, but it’s also because I can help kids who are …really, really sick, mom.”, “….but I do want a prize too.”

…..”oh and mom, can I get a haircut?”

“why do you want a hair cut?” I asked knowing he wants long Jonas Brothers hair.

“well, I want to donate it to the ones that are bald….”

Awww, I LOVE THAT KID!!!!

So if you would like to help Leon on his quest please click this Sponsor Leon link.

Thank you very much!!

From: Leon Hi, My name is Leon, I am 7-years-old and I am participating in a St. Jude Math-A-Thon event. Math-A-Thon is a fun way to benefit the kids of St. Jude by obtaining sponsors from family and friends to work math problems. St. Jude is internationally recognized for its pioneering work in finding cures and saving children with cancer and other catastrophic diseases. Founded by late entertainer Danny Thomas and based in Memphis, Tennessee, St. Jude freely shares its discoveries with scientific and medical communities around the world. No family ever pays for treatments not covered by insurance, and families without insurance are never asked to pay. This is why St. Jude needs our help. You can help me reach my goal by clicking the link below to make an online credit card donation. If you do not wish to make an online donation but prefer to use a check, please contact me and let me know. I can make other arrangements with you to obtain your donation. Please click here to donate.

Oh and feel free to forward the link to anyone else you think would like to help!

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