Just call me Jiji

…me, just pretending to be me ….now, where did I put that cape??

Archive for the tag “fundraiser”

Extra! Extra! Read All About It!

Here is a (very belated) update on “Leon’s Locks for St. Judes Kids Fundraiser”.

As you may or may not know my son, Leon, had been growing his hair since 1st grade to help a child at the St. Jude Children’s Research Hospital. Four year’s later my little guy isn’t so little anymore and is going into 5th grade (I KNOW! Right?) and met his goal to donate his hair. He also has met part of his goal to help the children of St. Judes. While he did not meet his personal goal of raising $5,000 he sure as heck did an amazing job in raising over $1500. His story ran in a local newspaper a few weeks ago. You can find the story here, but please note that the link provided in the story has been unfortunately closed, we are looking to reopen the event.

We are just so proud of him. He is just such an amazing kid.

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From One Differently- Abled Child to Another

My Wild Child

Leon is 9 years old and he has Asperger Syndrome /High Functioning Autism. He is an extremely  bright boy with big ideas and an even  bigger heart.

One of  the many wonderful characteristic of Asperger’s is Determination, and he’s got  plenty of that.  When Leon has is heart set on something, he cannot be derailed. When Leon was in 1st grade, he watched a video presentation in school about St. Judes Children’s Hospital, on that day he decided he wanted to help the kids of St. Judes, because, in his words, “I can help kids who are really, really sick” .  He then told me he wanted to cut his hair

In 2008, sporting his blue mohawk

(which was  Mohawk  at the time). When I asked him why, he said “because, I want to donate it to the ones that are bald”.

  Leon has not cut his hair since and that was back in 2008. In that time he has been teased, mocked, and bullied by other kids. He is often mistaken for a girl. But Leon takes it all in stride. He simply explains to those patient enough to listen, “ I am not a girl, I am a boy. I am  just growing my hair to donate to St. Judes Kids”.

In 2011, we found out that there was no guarantee that his donated hair would go to a  St. Judes Child. In fact it was unlikely. This did not sit well with Leon at all. He was very upset in fact. Although he knew that his hair would still go to a good cause, it was the children of St. Judes and their story that had touched his heart.

This is why he began hosting the “Leon’s Locks for St. Judes Kids Fundraiser”. It was important to him that he still do something for St. Judes Kids. Leon set his goal quite high, at $5000. We know it is a long shot but we have always taught him to reach for the stars and to believe in himself.

We worked together as a family to get donations where ever we could. His father and I reached out to our contacts via email, Facebook, and this website.  We also had cards made up for Leon to give out when the opportunity presented itself.

Leon’s Story Card

He gave them out to friends and their parents, at birthday parties, and communions. We carried them with us where ever we went. We even had a pin and a T-shirt made that said “ask me about my hair”.

Then when asked he could tell his story and give out a card. This worked out very well, because Leon did not always feel comfortable approaching people he did not know. But when asked he was always more than happy to tell his story about why his hair was so long. He spoke to people on the train, in restaurants, and we even hung out in Times Square for a while, giving out information cards.

Times Square NYC

 

.Both his dad and I are very proud of how much bravery and confidence he has shown when approaching and being approached by others. We love how much partaking in this, has helped him improve on his social skills, something that is greatly hindered by his Asperger Syndrome.

Being a part of this fundraiser has helped us grow in so many ways, both individually, and together as a family.

Tomorrow, July 7 2012, we will celebrate with our friends and family at our Annual BBQ that we have every year in July. At some point in the evening Leon will cut his hair for donation to “Locks of Love”. And while we  are happy to report that since Leon began this fundraiser in March 2012 , he has raised $1385.00;  we hope to continue in spreading the word and getting more people to donate to his fundraiser for St Judes Children’s Research Hospital.

Folks can donate with a credit card via this link https://waystohelp.stjude.org/sjVPortal/public/event/page/displayEventPage.do?sectionStyle=subMenuFour&eventId=310924&programId=2002

Please forward and share this story as much as possible!!

Leon’s self portrait

…and they’ll tell two friends…

Leon is very proud of himself, as well he should be. The “Leon’s Locks for St Jude Kids” fundraiser that he is hosting online, may have had a slow start but as of today it is just $5 shy of $700.

Leon is still determined and confident that he will reach his final goal of $5000.

We have succeeded thus far by word of mouth and reaching out to our family and friends via social networks like Facebook, Twitter, & Pintrest; and of course via his dedicated webpage on this blog.

We’ve reached out to everyone we know personally and have bid our contacts to further spread Leon’s message.

Our most successful venue thus far has been by way of Facebook. We’ve posted this link, at least once a week (if not more), and asked that people like it and share it on their own walls. Additionally we have also created a Facebook event for this fundraiser as well. The hope is that everyone invited will then invite as many people as they are comfortable with from their own contacts, in an effort to spread the word even further. And then of course their contacts will do the same, and so on, and so on, and so on.

Remember  when Heather Locklear told 2 friends and they told 2 friends and so on and so on…?

Hey you could be like Heather too! Just follow this link to our Online Facebook Event page and let us know you are in, then invite two friends (or more) to then invite two more friends……

…and so on and so on and so on…

That would actually go a very long way in helping us to get the word out and hopefully get the donations to reach goal.

Thank you for your support!

Spreading it on Thick

First I would like to THANK all those who have been so generous to contribute to Leon’s fundraiser thus far!!! We have received contributions from all different parts of the country and across the globe. (Thanks to some friends is Germany) 🙂

You are all so very AWESOME.

The Leon’s Locks for St. Jude Kids fundraising event is still ongoing. So if you have not had a chance to donate yet, please go to the website now and make a donation. Any amount that you can afford great or small, will help to make a HUGE difference, in finding new treatments for childhood cancer and other catastrophic diseases. Your donation can help St. Jude continue its lifesaving work against pediatric diseases.

Another key and very important step that you can take to help Leon to reach his goal of $5,000 is to help us spread the word. Help us spread the word by forwarding this link to everyone you know via Email, Twitter, Facebook, and even on Pintrest.

The more people we can reach; the closer we will get to Leon’s goal. So please help us spread the word.

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