Just call me Jiji

…me, just pretending to be me ….now, where did I put that cape??

Archive for the tag “House / Home”

Picking up the Pieces

So my previous post was a bit DESPERATE, don’t you think?

I was in a pretty pathetic and desperate state of mind.

But today is another day and I’ve got some repairs to make.

I am happy to say I slept a good 10 hours that night. Something I definitely needed. Not napping created the crash and burn effect I needed to restart my clock. I’ve been eating better and taking my meds ON TIME, and at least TRYING to get on a better if not normal sleep schedule.

The morning after was tough and slow going. I had a very heavy patch of brain fog going on and it lasted quite a while too. But that was to be expected and I just made my way through it.

When life gets you down do you wanna know what you’ve gotta do? Just keep swimming. Just keep swimming. - Dory, ” Finding Nemo “

When I woke up the next morning, I decided to take a ME DAY!

…and now I am thinking maybe it’s more like a ME WEEK. ….or 2 ….ish.

I really need to pick up some pieces and get back on track. Because believe it or not I was somewhat on track. Really, I was! December went fairly well for me in terms of getting things done.

As the holidays approached, I was able to Christmas shop, get my house back together, decorate, and celebrate with family and friends, but not without the HUGE, HUGE, HUGE help I got from Ron. (…and Leon too). Thank you, my loves!

All the clutter found a home or else it went into the trash. We cleared away piles of stuff that we really did not need any longer. And while there was/is still more work to be done, we were able to make our living space, livable and our workspace, workable again.

We decorated the house and the beautiful Christmas tree that Ron and Leon went out and chopped down, during the Annual Oldfield Christmas Tree Hunt. The house was finally a warm and welcoming place again. Everything looked so beautiful and inviting. AND PEACEFUL.

The lights are my least favorite part of decorating the tree

Awww fiddlesticks - half the tree lights don't work

We spent Christmas Eve at home with our family, both Ron’s and mine came for dinner (17 of us in total). And the thing that amazed me the most about it was how relaxed I felt. Tired, but relaxed.  Finally!!!

I love taking out my china for the holidays, it makes me feel like I'm almost a grown-up.

Can you see the tree in the next room?

I realized it was because my house was full of the people I love and who love me, AND because Ron and I had put so much effort into putting order back into our home.

Santa Ron!

My Family

My loveys

Like mother, like daughter

She's waiting for Omi to cave, an hand over the chocolate.

You blow boy!!! In a good way!

The Angel and the Devil, but which is which?

Cheers!

Cheers!

Cousins!

Much of the week that followed Christmas, was spent relaxing in the glow of the Christmas lights, watching Leon play with all his new toys. We spent some time visiting with family, Leon got to go ice skating (can you imagine me on skates, HA!), and we took our traditional trip into NYC to see the tree in Rockefeller Center and check out the Christmas Window Displays.  We ended our winter break and the year at the home of a dear friend watching the Doctor Who marathon. It was a wonderful little staycation for all of us, and it certainly ended the year nicely.

Leon and like a third of Grandma's Christmas Village

Our Tree! The lights flying off to the side are actually being pulled by Santa in his sleigh and his 8 tiny reindeer.

Leon and his Christmas haul! It was a very Merry Skylander Christmas!

Now in the midst of all that activity, I had made one big mistake. I ran out of refills for my Cymbalta and kept forgetting to contact the doctor’s office. So for about a week-ish leading up to when I completely snapped (see previous post) I was off meds.  No wonder I had been such a WRECK! – DUH!

But NOW, I AM doing better,

So to those of you who reached out, THANK YOU! AND I LOVE YOU TOO!

I am feelin’ better, so no worries. But I need to take some ME TIME.

So…   I am not ignoring you. I am just under repairs,     ….and probably not answering the phone,    …or emails.

But I loves ya!!

Oh and Happy Christmas, Season’s Greetings and a Joyful New Year to all!

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Ahhh, just another ADHD conversation.

Me: Leon!!!! Why is there a bath towel STUFFED into the toilet bowl!!!!!!!

Leon: What, it’s not my fault! I dropped my glasses in there!

Me: !@#%@#!!!

Ahhh, just another ADHD conversation.

He's just lucky he's so damn beautiful

Today’s To Do’s

Find Christmas Lights and put them up

Get started on making the house more festive

Make a visible dent in the computer room (desk top and file cabinets)

Blog a bit

Put paperwork in order for Special Ed Meetings

Write note to teacher re: Leon’s checklists

Make returns to stores

Be happy with what I have accomplished today, and start again tomorrow.

 

 

I have so much I need to do. So, so much. So much that I have just been tripping myself up just thinking about it all the time.

This year has not been kind to me (that post is coming soon). It’s as if my life was involved in a 10  car pileup. One thing went wrong, then another, and another, and another, and so on. And detangling it all is a mess in itself. I would get so over whelmed with the enormity of it, that I would feel road-blocked and paralyzed to do anything. I just never knew where to start. Anything that I did start would be dependant on something else getting done first, and getting that done would also depend on another thing happening and so on and so on. I just did not know where to start.  So in the end I mostly ended up doing nothing and the pile-up would just keep getting bigger and bigger and bigger and so on. And there I was trapped somewhere in the middle of it all just getting more and more depressed over what a failure I am as a wife and mother and even at taking care of myself.

I’ve always been a list maker, and that has usually worked for me. But this year somewhere along the line I lost my way. I would get stuck on making the list and never actually get to the work truth was the lists wouldn’t be made up of 4 or 5 things to get done it would be 4 or 5 pages of things I still haven’t done. Eventually I just stopped making the lists all together, again because of the enormity of it all. I felt like I was failing at life.

At some point you can either give in and become a hoarder or you have to get a plan to get things done.

I had a plan to get a plan. But I  wasn’t sure what that plan was yet or even where to look.

I finally found one I want to give a go at, in a hot tub, at the base of Hunter Mountain, just a few weeks ago.

I was enjoying a soak in the tub with a few friends and a few drinks during my brother-in-law’s wedding weekend in the Catskills. We got to catch up with friends we hadn’t spent time with in a long time. The wedding was a blast and I walked away from that weekend with a new plan.

Melissa is the one who told me about a book I should look into. I was drunk that night so by morning the details were a bit hazy. But what I pieced together from our conversation was that it had something something something to do with seven somethings or other, in which you decide who you are, and who you want to be, and what you want to accomplish and then you assign a priority or a percentage of your time to it or something like that, …I think?

It went something like, what percentage of who I am is a wife, a mother, a blogger, PTA volunteer, crafter, etc… and then assign a percentage of your time to that part of you and work on a little bit of each part of who I am each day. So like if I am 50% homemaker and 25% crafter and 10% blogger, the time I give to each of those things should be divided accordingly. This way I can start making a dent by freeing myself up a little bit more each day in all the parts of my world that are important to me, including the parts that wants to do more than just clean house and chase after what I haven’t gotten to yet.

I was drunk at the time, so I could have gotten it all wrong but I did get something out of it that makes sense to me. At the time I thought she was referring to this book which I had read about previously (but I never actually read the book itself), and I had already put it on my universal wishlist.  I later learned via a Facebook convo with her that she actually meant this book, which also looks like a good read. I haven’t read either book as of yet, but they are both on my wishlist now and I do plan to read them when the avid reader in me jumps up to a higher priority in my life.

So while I am not following any specific magic formula as of yet on how to get things done, I was inspired by what I had learned from my friend to come up with a plan I could actually follow. For this plan I need to set priorities and assign a specific amount of time in my day to each of these priorities. And just get done what I can in the amount of time I give myself. And I also need to allow myself to be happy with what I have accomplished for the day and not wallow in the muck of what I still have to do, there is always tomorrow.

So, Melissa, if you are reading this, thanks for the info, and the kick in the pants to getting things done.

Now excuse me while I go look for the Christmas lights.

 

 

 

 

 

 

 

SCREAM!!!!!!!!!!!!

You scream, I scream, we all screeeeeam…

That’s it nothing else, we all just scream

SCREEEEEEEEEEEEEEEEEEEEAM!!!!!!!!!!!

Back when I was young, about a million trillion years ago, I had a small group of people I hung  out with in high school, and  we had a brilliant way of dealing with stress.

We would get in the car and drive down to the beach at top speed with all the windows down
and just SCREAM at the top of our lungs.

I can’t tell you how good that felt!! It was amazing!!

I long for a good long scream

I NEED a good long scream!!!

Anyone want to go have a scream with me?????

{ Just FYI – This scream was brought to you by the letters N-O-T & H-A-P-P-Y  and is courtesy of my first impression of the new school psychologist – which is condescending, major-interuptus-not-listen-to-us, and blechy)

“I LOVE my Feral little child.”

Early in the morning through bleary eyes, I peer out across the sun lit room at my child, and a grin slowly forms on my lips as I think to myself;

I LOVE my Feral little child.”

Sitting cross-legged on the floor wearing only his PJ bottoms, with his fuzzy blanket draped around him like an animal skin of sorts, with his long, wild and crazy hair all messed up and draped over his shoulders; he really does look like a feral child!!

He looked back at me, and I fully expected him to say “Me Leon, You Mommy, Me hunt and gather food, You wait here.” instead I got “Mooooom, I am huuuuungreeeeeey!” To which I replied, “Me Mommy, me tired, go now, ask your father to forage for food”; his reply … “you’re weird!”

Yes, yes I am!

I later opened up my laptop to look up the meaning behind “feral child” , I wanted to be sure I was thinking of the right word. Wikipedia not only spit out the meaning, but provided a picture in example as well:

Oh look!! It’s a picture of my very own sweet child!

It looks just like him!!!  At least I think it does.

It’s fitting though, and not just because he looks like a feral child with his hair all tangled, and mussed up, going in all different directions. But also, because he is a wild child at heart. And I mean that in the best possible way.

He certainly dances to the beat of his own drummer. As I’ve often maintained, he is a strong-willed child with a mind of his own, and once it is made up there is no changing it.

Such as it is with his long luscious locks, which I am happy to say, we have learned to tame (somewhat anyway).

He made up his mind to grow his hair long just short of 2 years ago in January of 2010, I remember the date because I blogged about it here.

It was late in January when he came home all excited about doing the Math-a-thon to raise money for St Jude Children’s’ Hospital and helping other kids his own age, who were sick with cancer. It was on that day that he asked if he could donate his hair to the kids at St. Judes. When we told him he would have to have a lot more hair than what had just recently grown out from his mohawk, he said he didn’t mind at all.

Leon in Disney sporting his blue mohawk

Leon's Hair as it was the day he came home and declared he was donating his hair to a kid like him with cancer

I also told him that it would probably take him a few years before he would have enough to donate. It didn’t phase him one bit. Both Ron and I  were pretty proud of him for wanting to do this, but we also thought it would not last. Boy were we wrong. It’s been two years and he still has an inch or two more to grow before he can donate it. Despite being picked on and teased in summer camp, and consistently being called a  girl by strangers, he is more determined than ever to reach his goal.

We’ve come a long way….

   He is such a beautiful child, it is no wonder strangers call him a girl

In the end it will be so worth it. And that long hair suits him, it suits his personality. And yes he does occasionally look like a feral child, possibly raised by monkeys. It was after all just yesterday that I caught my wild little child in the act of standing on his chair in the pizzeria attempting to swing on the lamp that hung above his table. But no matter how wild my little child gets or looks, he will always be MY little wild child!

“I LOVE my Feral little child.”

I Nominate; My Superman

I recently found this on  ellen ;

Nominate the Amazing Person in Your Life…

Do you know an amazing person who could use Ellen’s help? We want to hear about them! Tell us all about the most deserving person you know, and how Ellen can rock their world. Maybe it’s a family member or spouse who always puts your needs before their own, a neighbor who has changed your community for the better, or even a teacher who goes above and beyond with your kids. This season, Ellen’s gonna keep giving back!
Read more: http://ellen.warnerbros.com/show/respond/?PlugID=433#ixzz1RH3DUlaq

So I decided to nominate My Superman!

Dear Ellen,

I love you and I love your show. You and your show always make my day! You are just so genuine, with a hugely generous nature. You have a way of making people feel comfortable and at ease; like spending time with a really good friend.

Well good friend, I’d like to share something with you about my family, about my husband in particular.

His name is Ron, he is a handsome devil, a smooth talker with an odd sense of humor, a sci-fi geek, who rocks my world, and keeps things balanced in our lives. And he is the most giving and amazing man I know. He always puts the needs of our family before his own.  When I met Ron, he became the man who renewed my faith in hope. In short he is my Superhero.

My family consists of Ron (39), myself (42), and our son, Leon (8)

We have a good life, NOT an easy one, but a good one, because we have each other. Things have always been tough on us financially, and we always seem to muddle through whatever life throws at us, either on our own or with help from our extended family. And for this we have always been truly grateful.

We all do our best to make the most of our lives. But no one works harder than my husband to provide and take care of our little family. I try and do my best too, but I have so many limitations, that I fear he often gets the short end of the stick.

Both my son and I suffer from disabilities that require regular doctor visits and a lot of very expensive medication between the both of us. My son has severe ADHD/ODD and I suffer from Fibromyalgia. We have a HUGE deductible on our medical insurance and given our individual medical needs it is necessary for us to come up with a LARGE sum of money in a very small amount of time at the beginning of each year. He barely makes enough money that we can usually get by living paycheck to paycheck with just enough left over to cover and enjoy the little things like the movies or Cub Scout fees for our son.  But when the big bills come in, that’s when we really struggle.

This year, so far, has really tested Ron’s limits.  Ron’s car died, and while we managed to get by with only one car for a few months we did eventually have to buy a second used car, which is already in need of repair.

In addition to our financial stress, Ron has had to take on additional parenting duties, above and beyond all the amazing things he already does with and for our son, due to the decline in my health this year.

No matter what comes our way, Ron does everything he can to make things right again. He really is a good man, and he puts his all into everything he does. As a husband he is just amazing, not only does he work hard in the office every day, but he comes home to take care of a majority of the household duties, when I can’t, due to my disability; and he still makes time to be a Den Leader in Leon’s Cub Scout troop and spend quality time with him.

Lately though, it seems as if life has really been testing Ron’s limits. My husband’s normally optimistic outlook on life seems to be dimming. Right now, Ron feels as if we just can’t get a break and that everything is getting thrown at him all at once and he just can’t get ahead. Some days I look at him and he just looks so terribly defeated, like someone had just drained him of all his energy. It kills me to see him this way.

This is a man who truly deserves a break. Not only is he an amazing husband and father but he is also a genuinely GOOD MAN!

Ellen, PLEASE help me make my husband’s life just a little bit easier.

Here we are at his sister’s wedding, which also happens to be our wedding anniversary. (I am the one with the pink hair 🙂 )

Me and my Superman!

EDITTED ON Jan 19th 2012 to add:

Hey Ellen,

Being that this IS your birthday-month; I wanted to share with you that May is my husband’s birthday month. In fact, this year he turns 40 on May 13, 2012.

You know incase the SWAGGIN WAGON is in NY around that time???

That’s a hint…. you know incase you didn’t catch it.

Love ya Ellen!!

And my Superman!!!

WTF – What The Fibro is Wrong with Me?

 In my previous post I recounted my past six months of Fibro flare-up hell.

It feels all wrong! Not that there is ever anything right about Fibro; but this has been wronger then usual.

Is my fibro changing? Getting Worse?

Actually that is a really dumb question. Of course it is changing. As we age we change, stands to reason that our disabilities change too. Some things get easier to tolerate, while other things get worse.

But what if I am not getting worse? What if this is something completely different all together? It is all too easy to just blame everything on fibro all the time. But the possibility that I could have something in addition to FMS, is feasible, isn’t it? What if I was completely misdiagnosed all together?

This year of pain and exhaustion has felt so intensely bad that this can’t just be my fibro; it HAS to be something more than that.  …Doesn’t it?

I know, I know, that’s what my doctor is for. But there have been issues with the whole seeking medical attention thing this past year. My last visit with my primary care doctor in 2010 was for my routine 3 month fibro maintenance follow-up in October. It was before this flare-up really reared its ugly head, so I reported that I was feeling pretty good at the time. Then winter came in and decimated me with freezing cold weather and blizzards. My regularly scheduled winter flare-up tore me down, big time.

My next 3 month appointment which was scheduled for the end of January, didn’t work out, because I had to reschedule it due to the fact that Ron had commandeered my van for work when his car died and I no longer had transportation. Well, that and it was so bitterly cold that I just couldn’t get out of bed, let alone my house.

Unfortunately, I had to cancel the March appointment too. My sister was in the hospital and sadly, at 23 weeks pregnant, lost her baby. It was a very difficult month both in the weeks prior when the complications in her pregnancy arose, and after – as this was a terrible loss.

We all mourn the loss of the sweet little girl who was taken before we could know her but not before we loved her.

It was the beginning of April that I FINALLY met with my doctor. But it wasn’t a regular maintenance visit; it was a sick visit – for my nasal/bronchial issues. Dr. T is pretty much a stickler about only getting into what the appointment was scheduled for so I was shooed out of the examining room before I had a chance to go into any details about what was going on. But not before he suggested I see a Physiatrist first and then go back and see him. I think he was reprimanding/punishing me for not keeping my appointments…

I had no idea what a physiatrist was, so I looked it up here. And after I checked out the doctor’s website, I felt hopeful that this was going to be my answer. After months of no energy or strength, and constant fatigue and pain I was more than ready for answers. When I spoke with the receptionist to make my appointment, I had to admit that it had been more than 6 years since I had any MRI’s or other testing done. Because up till now I was maintaining my Fibro with meds; and flare-ups, although still painful, came and then WENT.

She told me not to worry; the doctor would order all new tests. When I got off the phone I felt a sense of relief. I just wanted to get answers to what was going on with me. And, here was a doctor that “instead of treating only specific symptoms and illnesses, a D.O. will regard your body as an integrated whole”, according to his website.

I had been going through so much difficulty and pain, all I wanted was to start anew. The seasons were changing and I was tired of hibernating. I had spent so long trapped in my home by the cold weather; my illness; and with still no transportation; and although I still felt like utter crap, I had to force myself to join the land of the living again, if anything, for sanity’s sake. I had been a shut in for so long that even my friendships were suffering. I tend to withdraw from people; friends and family alike; when things get this raw (read painful and depressing). And believe me this was raw!

In my effort to reconnect with my friends (and family) I felt I owed it to them to clarify why I needed to withdraw so much, why I bailed on commitments I had made, why I could not be reached by phone or even return messages. I felt I had to explain that I don’t mean to be a lousy friend, who forgets things, breaks promises, and just disappears.

In the process, of explaining what I was going through, I surprisingly had three separate people who didn’t even know each other suggest that it sounded like I had MS.

MS? Really? multiple sclerosis

I had heard of MS; but in truth I didn’t know anything about it, at all. It would never have occurred to me. When the first person said something to me I did what I always do; I disregarded the possibility that it could be anything but Fibro. After all, I had my diagnosis, and it took forever to get that in the first place, I didn’t want to start questioning it, no way.

But then a second friend suggested it as well. She knew a lot about it and started describing me, to me. All I could do was keep sit there nodding and saying, “Yeah, that’s me!”, “that’s exactly what’s happening to me”, “you are describing me”; her response was, “no, I am describing MS”.

Thoughts that crept around in my head: Oh crap!! Do I have MS? Wait! What the hell is MS?; What are the symptoms?; How do I know if this is what I have?; Do I really wanna know?

So I peeked, just a little, I looked it up on the internet. Just enough to get general info. I am all for getting self-informed and getting educated about something like ADHD, for instance, when your child has been diagnosed with it. But with this, I just didn’t want to read so much in to it, that I’d start self-diagnosing before I even see the doctor. What I read up on was the basics; the symptoms and how one get’s diagnosed.  I also read that it isn’t unheard of for someone suffering from MS to be misdiagnosed with Fibro.

As my appointment with the physiatrist drew nearer I got more and more emotional about how bad this whole year has been so far because of some illness that I have. I just wanted answers and I felt that in order to do that I need to start from scratch. I want to wipe the slate clean and start fresh as if I had never gotten my diagnosis for FMS all those years ago. Like I mentioned earlier, it is all too easy to pigeon-hole everything into Fibro without considering there might be something else going on.

A few hours before my appointment, I sat down and I just started writing and I kept writing until I had 3 pages full of what I needed to remember to discuss with the doctor. I listed symptoms, body parts affected, descriptions of the level of pain I was feeling, the emotional toll it was taking on me, etc.

It was unfortunate that after all the time I took to prepare, I ended up forgetting it all at home. I was beside myself. The poor doctor did not know what to do with me. I just started crying and crying. I could not get my thoughts together, I was forgetting everything I wanted to talk about AND what was worse was this doctor just was not living up to my expectations. I wanted him to have all the answers, to fix me, to order the tests that were going to get me my answers.

The doctor didn’t actually do anything wrong, he was just not right for me. He focused on the pain in my arms and scheduled an EKG/nerve test. Through my tears I managed to tell him I felt that that wasn’t enough. What about the pains in the rest of my body? His response was that he wanted to focus on one thing at a time and he advised me to go back to my primary care physician for a referral to a rheumatologist for my fibro.

I left there in tears. I cried all the way home and by the time I walked back into my house I was sobbing uncontrollably; poor Ron and Leon had no idea what was going on and were very concerned.

I want a doctor that was going to treat the whole of me; not just the parts of me. This is not what I got in this doctor. I realize that I had put way too much stock in this one visit, and my hopes and expectations were waaaay too high. I was overly emotional, and at a loss. Now what?

The fact is I don’t see a rheumatologist although I know I should, but after never being able to get an appointment with the one that I initially had, the one who diagnosed the fibro, I began to rely on the neurologist that she had sent me to. I was maintaining fairly well with the meds that my neuro had prescribed.  Eventually I lost my neuro too, due to the fact that she became ill and left the practice. In the end I never did find a new rheumatologist or neurologist; my primary care doctor was prescribing the medications I needed, so I felt that there was no need to find another one; till now that is.

Last week I met with my primary care physician, to discuss a plan. This time I did not forget my notes. Even so, I was still a blubbering fool, with tears falling uncontrollably from my eyes, as I explained how bad things had gotten and how lost I felt. I explained that I was concerned that what is going on with me was something worse than Fibro and I shared the suspicions of MS that others and now myself had. In the end my doctor told me that he feels that I have extreme Fibromyalgia and that I am suffering from severe depression; he also feels that I am beyond his help at this point and he referred me to a rheumatologist and a psychiatrist. When I questioned the MS again, he told me that he felt it was unlikely that I had MS at all. I would love to just accept that but I am too worried about something being over looked because it is too easy to stick with the original diagnosis. He gave me the name of a neurologist to call, if I felt the need to pursue it.

I do and I did. Feel the need to pursue it I mean. I have an appointment with both a rheumatologist and a neurologist next week. I have not scheduled an appointment with a psychiatrist yet as I have yet to find one that takes my insurance.

In the several days it has taken me to write this post (I can only do a little at a time due to the pain in my arms and hands) the tears have seemed to come to a halt. Writing and getting all these thoughts and feelings out of my head seems to help a lot. But I will bring the tissues to my next appointment; just in case. 😉

The truth about housework, sex, and fibromyalgia

I like sex. Most people like sex. Some people like it more than others and some don’t like it at all.

I cannot speak for everyone, but I am pretty sure that the majority of people tend to experience a more frequent and active sex life in their younger years.

As life goes on, it seems as if, frequency, activity levels, and even desire seem to fade.  Some even feel that, it is marriage that does it. I personally don’t think it is marriage that does it, it’s just plain ol’ life that get’s in the way. Too much work, too much stress, not enough time, not enough privacy (kids around), too tired, and for some folks like me, something like illness or disability can get in the way too.

Fibro flares have a number of different triggers. Physical activity and exerting one’s self is one of those triggers. And let’s face it if you are not physically exerting yourself in the bedroom then maybe you aren’t doing it right.

So suffice it to say that my fibromyalgia has the potential to ruin my love life.  In fact for a time it really did. With flare-ups and the exhaustion and pain that come with it, something always has to give. That is just a fact of fibromyalgia.

With fibro too many things get put to the back burner. Projects and activities I want to plan and do rarely get further than being just an idea in my addled brain. The energy to do the everyday things in life, like housecleaning or even personal maintenance has to be sparingly doled out. Too many things get pushed to the side, with the intention of getting to it eventually.

The time, attention, and affection we give to the people we love, should not be one of those things that get pushed aside, or put on the back burner. But because the people we love, know us so well, and are more understanding of our limitations they often bear the brunt of it.

At the beginning of this year Ron and I had a moment to sit back and talk about how much we missed each other. Which would not be so strange if it were not for the fact that we were the first and last person that each of us saw and spoke to each day.  What we missed was the physical attention we gave to one another.

Yes, we were talking about sex, but not just about sex. We also missed the little touches in between. The touch on the shoulder, the arm around the waist, the holding hands, the kisses and the occasional butt squeeze, and yes, the sex that many of those things could eventually lead too. Where did all those things go?

We had plenty of excuses; too stressed, no time, too tired, too busy, no energy, too many body aches, too much to do right now, too much to do tomorrow.

Granted these excuses fit anyone and everyone, fibro or no fibro. But unless you have a trapeze in your bedroom, how many people have to worry that a night of sexual activity might put them out of commission for the following day or two?

And that is without the trapeze in our bed room 😉

Our talk led to the promise we made to each other. Which was to make more of an effort to be more physically attentive with one another on a daily basis. To snuggle on the couch instead of sit at opposite ends of it, to kiss more often, and hold hands when our hands are free. To rest a hand on each other or give a little squeeze when then opportunity presented itself. And yes, to make time for sex, even if it has to be scheduled in.

So we’ve kept our promise. We have made more time for just the two of us. We have a monthly date night scheduled. And we  are a lot more physically attentive to one another, both in and out of the bedroom.

I’ve got to say, life is a lot sweeter and happier in the arms of the person I live and breathe for.

The only downside is that, the energy that goes into the physical activities in the bedroom tends to trigger a fibro flare in me.

And with fibro flares, something always has to give. Fibromyalgia could be riuining my sex/love life. but we REFUSE to let it!

So please excuse my filthy house; but if you had to make a choice between making love or housework, what would you choose? 🙂

…and so what, if I can’t function at 100% the next day or two, at least I have a smile on face,as I am trying to figure out how I am going to catch up with life that is still proceeding on with out me.

TMI????

Never Say Never…

On the weekends it can be hard to get Leon to spend time AWAY from his video games, but we try our best. He loves to draw, and will often spend time doing that while watching TV. It tends to add up to more screen time than Ron or I are comfortable with. But when the both of us are busy around the house trying to get things done; it is easier to just let him do his thing rather than have to stop what we are doing to make sure he is entertained and out of trouble 😉 .

This weekend we enjoyed the nice warm spring weather, and did manage to get him outdoors for a couple of hours on Saturday, but nothing engages his ADHD brain out there for more than a few minutes at a time. My guess is that there is just TOO MUCH going on around him that finding focus on just one thing is just not possible.

Sunday was beautiful too, but between my migraine and Ron’s aches and pains; none of us got out of the house. By late afternoon I was asleep in the bedroom with curtains drawn and a pillow on my head to drown out any sound or light. That left Ron to deal with Leon for the better part of the day. He actually managed to get Leon away from the screen machines, letting him know that he needed to find something else to do and it could not involve anything with a screen on it.

Leon was surprisingly compliant about it and grabbed a few books out of his room and began to read. Awesome!

He loves to read and likes all kinds of books; chapter books like Goosebumps, Choose Your Own Adventure Books like Journey Under the Sea, Graphic novels like Max Axiom Science Series, but mostly he like reference books like The Big Book of Knowledge from which he can learn all kinds of new and interesting facts. They are all great books!

After reading for a bit Leon brings in “The Big Book of Knowledge” to Ron; opened to pages 26 and 27

The Big Book of Knowledge – pages 26 & 27

 

He points out the passage pictured below and says “Umm, Dad? Is this True???” 

Ron reads it, and tells him, that yes it is true. To which Leon replies; “Sounds Gross!, I am NEVER going to do that!”

**Tee Hee – this kid cracks me up! **

Never say never kiddo… but do wait until you are at least 18 

…and IN LOVE!

Oh and USE A CONDOM!

Gettin’ my Creative Juices Flowin’

I have often heard;

“you are so talented, you should start a business”.

That would be WONDERFUL, I’d love to do that.

The question is; how? I have no business sense and the coin purse is empty. And you know the old adage; it takes money to make money.

And then, there is the lack of confidence in my talents

It’s not that I do not believe that I have any talent, it’s just that I feel there are people out there that are so much more talented than myself.

It doesn’t stop me from enjoying the creative process though. And sometimes I even impress myself with the outcome 🙂

My creative talents have included:

Drawing – it’s been a while, I did a lot of drawing as a child and in my teens. I have only recently taken it up again. I even tried some creative drawing on the computer to make some matching t-shirts for our trip to Disney;

Trip Planning – YES I definitely consider trip planning a creative talent!! And I do it well, especially when traveling with a highly sensory child with ADHD/ODD. Accommodations for travel require quite a bit of creativity. Like the badge I made for him to wear that clearly outlined the rules with a visual prompt.

Badge that "MICKEY" sent to Leon

Event Planning – like my DIY wedding where I made everything from the centerpieces to the floral arch to the ring box to the 150 hand-painted Champaign glasses I made to give as wedding favors to each of my guests.

The wedding arch

Close up

One of my centerpieces and a set of hand-painted champaign glass favors

Enough people told me that I should go into business selling my Glass Painting that I decided to give it a try.  I successfully sold a few pieces but in the end I wasn’t making enough money to cover the time, effort, and money it took to not only paint each piece , but then to pack everything up and transport them to a little craft fair, where I paid $60 for a table, only to sell a couple of pieces that maybe made me $40, and then have to pack it all back up and bring it back home. It just didn’t pay.

I also have helped to plan a few showers, my sister’s wedding, and quite a few themed birthday parties for kids. I love doing it. Especially the themey stuff

I was very proud of the School Bus cake I made on Leon's 1st Day of School

Leon’s 2nd Thomas Birthday Party  – he didn’t know how much I put into this party but I had fun doing it

I made one cake for the adults and little individual ones for each child

Leon’s 5th Pirate Birthday Party – yes my spoiled little child had 3 parties and 3 cakes

I hand-painted this shark to use as a game, it was fun as a photo prop too!

Leon’s 8th Lego Birthday Party;- this was a really fun party!

Lego Mini Marshmellow heads - real easy to make

Kiera’s 1st Ladybug Birthday

Ladybug Themed tutu I made for Kiera's 1st birthday

If I knew how, I would love to make money as an event planner.

Photography  – …is another talent I have. More specifically I have an eye for. Ron, often tells people that I am a photographer, and it bugs me, because I am SO NOT a photographer. I WISH I was, but at best I am a photo enthusiast. The difference being that although I thoroughly enjoy photography, and have an eye for capturing great shots; I pretty much have no education in photography at all.

I can really relate to the guy in this Panasonic Lumix commercial:

..see it’s not me,  it’s my camera! (which btw is a Canon)

…plus some creative digital photo editing too.

Basically I am just winging it.

When Leon was born, my love for photography grew, and my need to share it grew too. I started showcasing my photos on my smugmug website for all my friends and family to see.

First time using a spoon

(btw -gardening is NOT one of my talents)

As a result I was asked by two different sets of friends to photograph their weddings. Of course I said yes, it was an honor to be asked. I never expected to be paid, but when one of the couples thanked me with $1000.oo check , it gave me the confidence to try to make some money doing what I loved.

I got a few jobs and made some money, but most of my jobs were for friends and I had a hard time charging them, so that didn’t last too long. I also  needed better equipment in order for my photography to live up to my own standards.

In general I don’t know that I am so much talented as I am creative and crafty

And recently I have been inspired to try a new craft;

I was honored when my sister -in-law asked me if I could make a few things for her wedding. She pointed me in the direction of Etsy.com where she had seen a few things she had really liked. I was already familiar with Etsy, but I had never really perused the wedding category. One of the things she had pointed out to me, started to get my creative juices flowin again. It was something that I have tried my hand at before, but I didn’t really feel that there was a big demand for it. But with the trend of weddings being a bit more green, the rustic look of woodburning seems to have become a bit more popular.

Woodburning – is now a talent I am trying to cultivate. And I am really enjoying it. And who knows maybe I can even sell a few pieces on Etsy….

This is just a practice piece - but it gives you an idea of what I am going for

Besides what else is there for this SAHM to do?…uh, besides taking care of an ADHD child, managing my Fibro, keeping track of $800/month medicines, PTA volunteering, School Newspaper editor and author, caring for my 3 year old niece, plan playdates, etc.., etc…, etc…                            …oh yeah and maintain this blog.

Happy Birthday to ME!!

I celebrated my birthday this week, and despite my grumblings about the weather, it was very nice!!

I’d like to thank all the people who made my birthday special, and in case you don’t know who you are:

~ my Face Book friends, some of which I see on a regular basis and some I haven’t seen in many, many years or even ever met before (Lynn 🙂 ) for all your  well wishes from around the world.

~ well wishers who emailed, phoned, or sent cards, from NY, AZ, TX, and Germany 

~ friends and family baring gifts, from CD’s, DVD’s, tickets for two to a show in Manhattan, orchids, balloons, a family night at home, a fun – albeit VERY LOUD  night out – with both family and friends, CASH (thanks Mom), two tickets to see the cast of GLEE in concert, to being made Queen for the Day by my precious son, Leon.  I gotta say I really did get a kick outta Leon answering everything I said with “Yes, my Queen” or “As you wish, my Queen”  😉

I am one of those people who loves celebrating birthdays; especially my own. And definitely not because I am enjoying the aging processes; but because I am enjoying the living process.

Yes, yes, I know I’ve been grumbling a lot lately about how difficult it has been for me of late, living with FMS. HOWEVER, that is just what is at the surface of my life at this time. But beneath that layer of unfortunate… crap; lies many other layers of my life.

My ever-growing and never ending love life with my husband; the joy, wonder and pride  of watching my son grow and become; my sisterhood and friendships with friends – new and old; my ever-changing, ever maturing relationships with my family near and far, whether blood-related or bond-related; my accomplishments and achievements as a mom, a daughter, a sister, a friend, and a woman; life lessons I have learned and passed on; events and experiences I have yet to encounter; these are all layers of my life. These are the things worth celebrating!   

Happy Birthday to ME!!!    

Reading Between the lines.

For homework today Leon had to use each of his spelling words in a sentence.

This is what he came up with;

1. I’ve got something planned.  ~(Uh-oh)

2. I can’t do it. ~(Phew)

3. I’m obsessed with myths,aliens, and monsters.  ~(He’s obsessed alright)

4. It’s okay I am fine. ~(That’s good to know)

5. I won’t play “Super Smash Bros. Brawl” on the Wii. ~(You won’t??)

6.I’ll play “Mario Kart” on the Wii with Jill. ~(Oh I see what’s happening here)

7. You’ll probably say NO!!!!  ~(It was my first thought)

8. Let’s play it, please, pretty please. ~(Well since you put it that way…)

9. He’s crazy, I’m serious! ~(yes he is seriously crazy)

10. I couldn’t ever hate my mom. ~(I LOVE you too, sweetie)

11. Aren’t you going to play? ~(yes, as soon as your homework is done and your room is clean)

12. I wasn’t here when it happened. ~(Uh-oh, now what happened?)

13.They’ve rigged the game. ~(umm…I got nothin)

14. Shouldn’t you be cleaning, your room!!!  ~(well, shouldn’t YOU?)

15. Don’t play with that! ~( ….things mommy says over and over again???)

 

I think he is trying to tell me something, what do you think??? 

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